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thatbaldchick
  Unread post  Post subject: ISO CPAP mask suggestions  |  Posted: Fri Feb 16, 2018 9:37 am

Joined: Thu Feb 15, 2018 4:41 pm
Posts: 2

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I'm a CPAP newbie (started 1/25). A bit about me... I have a rare skin disorder, so I'm bald. I have had multiple facial reconstructive surgeries, including a submucosal cleft palate repair, upper jaw broken/advanced twice, sinus surgery, cheeks broken/repaired, etc.

I've tried the Amara View and the Resmed p10.

The Amara View hurts my face. Literally. The rigid plastic of the mask just hurts. The soft silicone thing collapses, the plastic sits on my face, and it hurts. I feel rested, but have to take meds all day long to alleviate the face pain just to wear the dumb mask at night.

The RT sent the ResMed P10 Nasal Pillows to try. While it is certainly more comfortable than the Amara View, my "sleep score" goes from 85-100 with the Amara View to 60-75 with the P10 and I definetely don't feel as rested. I've ordered a chin strap to try with the P10, it will be in tomorrow.

If the chin strap doesn't work, I need some recommendations for a face mask that isn't going to be painful. FWIW, I do wear eyeglasses, also.


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Pugsy
Unread post  Post subject: Re: ISO CPAP mask suggestions  |  Posted: Fri Feb 16, 2018 9:59 am
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Joined: Wed Aug 02, 2017 8:01 pm
Posts: 917
PAP Mask: ResMed AirFit P10 or DreamWear Gel nasal pillows
PAP Machine: ResMed AirSense 10 AutoSet for Her
Humidifier: ResMed AirSense 10
Pressure Setting: Depends on the machine as I actually have more than one

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If the chin strap doesn't help with the P10....

See if your DME can get their hands on the Respironics DreamWear full face mask. It's not released yet for public sale but it is out there for demo testing at some DMEs.

I am afraid that any of the other full face masks out there will have an even larger rigid frame than the Amara View's frame.

You might consider adding a mask liner to the Amara View to soften the contact points.
http://www.padacheek.com/PAC_Maskliners.html

This is the only image I have of the newest Respironics DreamWear mask.
It appears to be mostly soft silicone. I haven't actually seen one to know though.
Image


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thatbaldchick
Unread post  Post subject: Re: ISO CPAP mask suggestions  |  Posted: Fri Feb 16, 2018 12:02 pm

Joined: Thu Feb 15, 2018 4:41 pm
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Thanks, @Pugsy, that mask looks like it would actually work. I'll keep it in mind if the chin strap doesn't work.


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TheLankyLefty
Unread post  Post subject: Re: ISO CPAP mask suggestions  |  Posted: Sat Feb 17, 2018 5:15 pm
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Joined: Mon Aug 15, 2011 10:22 am
Posts: 4659
PAP Mask: Practically tried them all.
PAP Machine: Use Phillips Respironics System One APAP with Aflex for mask testing
Humidifier: None
Pressure Setting: When testing, I use APAP with a range of 5-10

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Pugsy wrote:
This is the only image I have of the newest Respironics DreamWear mask.
It appears to be mostly soft silicone. I haven't actually seen one to know though.
That's awesome. Must get my grubby paws on it.

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diamaunt
Unread post  Post subject: Re: ISO CPAP mask suggestions  |  Posted: Sat Feb 17, 2018 5:40 pm
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Joined: Wed Mar 02, 2016 2:26 am
Posts: 2100
Location: Dallas(ish)
PAP Mask: Resmed P10
PAP Machine: Resmed S9 vpap auto
Pressure Setting: 18/13-25/19

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thatbaldchick wrote:
The Amara View hurts my face. Literally. The rigid plastic of the mask just hurts. The soft silicone thing collapses, .

Sounds like you've got it strapped on too tight for your pressure.

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