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Smitty61
Unread post  Post subject: Oscar Data - Waking up right after Sleep  |  Posted: Wed Nov 25, 2020 3:16 am

Joined: Wed Nov 25, 2020 3:04 am
Posts: 4

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Hello - My issues are waking up as soon as I fall asleep due to stopped breathing. It's almost always going into Stage 1 NREM. I know it shows up like Sleep Wake Junk on OSCAR but it can go on for hours. And after so many times relaxing and falling asleep - then waking up with a gasp and chest hurting - very tough to roll back over.

I have attached my Oscar Data for 3 hours of "sleep" tonight, a 30 min span and zoomed in to 10 mins so you can see what this breathing looks like.

Some nights are better than others. Almost every night this is my problem - at times I am able to sleep through the initial issues then I am fine.

Any advice would be hugely appreciated.

I am also thinking of purchasing the $150 PAP therapy diagnosis from the AXG Sleep diagnostics website. Good idea?


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File comment: 10 min Zoomed in
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File comment: 1st 30 mins
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File comment: 3 Hours of "Sleep" tonight
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DeltaBravo3.8
Unread post  Post subject: Re: Oscar Data - Waking up right after Sleep  |  Posted: Wed Nov 25, 2020 9:55 am
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Joined: Sat Jul 04, 2020 8:38 am
Posts: 477
Location: Waynesboro, Pennsylvania, USA
PAP Mask: F&P Vitera & Simplus, ResMed F20 N/P30i & old Amara View
PAP Machine: NIV ResMed Astral 150 soon
Humidifier: To be included with Astral & heated single limb leak circuit
Pressure Setting: Will run iVAPS, ResMed's variant on AVAPS

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Something I see that is not going well, you have quite a bit of hypopnea. These are roughly 50-80% blockages vs 80-100% as an apnea event would be. It would seem even higher pressures may be needed, but you're already running moderately high pressures now. Secondly there are some reported RERAs. Have you and your doctor discussed plans to address these both? Have you considered a BPAP? And have you considered getting a ResMed APAP like the AirSense 10 AutoSet or the BPAP as in AirCurve VAuto? I have used both Respironics and ResMed, and the ResMed gives better therapy while adding to the comfort levels. Part of the reason is ResMeds don't need set at higher pressures to take care of the events, while Respironics do need pressures set right at the needed settings.

As for the paid for diagnostics, I'd not pay for it. Shouldn't you have had a sleep study to have purchased a PAP? That should have been diagnostic enough. I'd use the money you're wanting to spend on that diagnostic test on a better PAP device.

BTW you mention chest hurting. It is either getting used to PAP or if pain is more intense, maybe go get it checked. Doc may want some testing done to eliminate potential causes.

If the therapy is not working, remember there are other health issues that could be interfering with sleep. I can't tell if there are other issues, but even if there were no other issue, apnea therapy nor the diagnostic can make all things better. At least not instantly. And if you only get 3 hours therapy per night, that success is delayed even longer. Unfortunately there is not a magic pill that makes apnea and other sleep issues disappear. We that have apnea have to work at making sure the therapy does its job well and we must self advocate and work at therapy to be successful. The first step is to keep working at keeping the mask and PAP machine on for the entire night. If you can't get past the basics like that, then unfortunately you will not gain the benefits now or later.

_________________
Duct tape carrying K9; the tape helps quiet stupid.
Dave K9DWB 73s


https://www.sleepfiles.com/OSCAR
http://www.apneaboard.com/wiki/index.php/OSCAR_Help
http://www.apneaboard.com/wiki/index.php/OSCAR_Chart_Organization


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Smitty61
Unread post  Post subject: Re: Oscar Data - Waking up right after Sleep  |  Posted: Wed Nov 25, 2020 10:32 am

Joined: Wed Nov 25, 2020 3:04 am
Posts: 4

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Hi Delta Bravo - thank you so much for the reply! I left out a lot of information. I have been using CPAP for 6 months. I can leave it on all night - that above was taking a break from frustration of falling asleep and immediately getting woken up for hours.

I had about 2 months where my Avg AHI was 1 and sleep 7.5 hours a night. The night before this I used the CPAP for 9 hours. Using the CPAP and keeping it on is not difficult at all. It's just the constant waking up after falling asleep that kills me so I sometimes take a break.

Because this gasping for air during transitions happened suddenly in April (good sleep before then) - I have had tests with cardiologists, pulmonologists, diagnostic sleep labs, titration etc. The last few doctors I've seen have said "This shouldn't happen - but I don't know how to help."

But none of them really look at the OSCAR data. 1 looked at my diagnostic sleep test data and it was one of my better nights and they just said it confirmed I have sleep apnea. Got a Titration test a few months ago but never heard back. Any doctor I show this data to doesn't know what to do with it.

My chest hurts when I do a little gasp for breath in this initial events - besides that probably just anxiety. I can exercise without issues so heart and lungs must be ok? I dont know.


My next appointment is in two months with a specialist from Harvard Medicine.

Basically what I am looking for is an explanation of what is going on as I fall asleep? Like you said, it doesn't appear to be full apnea events. And added pressure doesn't seem to help.

Here's screen shorts from the night before.


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File comment: Zoomed in 15 mins
Before 15 mins.png
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File comment: Whole Night before
Night Before.png
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DeltaBravo3.8
Unread post  Post subject: Re: Oscar Data - Waking up right after Sleep  |  Posted: Wed Nov 25, 2020 11:18 am
User avatar

Joined: Sat Jul 04, 2020 8:38 am
Posts: 477
Location: Waynesboro, Pennsylvania, USA
PAP Mask: F&P Vitera & Simplus, ResMed F20 N/P30i & old Amara View
PAP Machine: NIV ResMed Astral 150 soon
Humidifier: To be included with Astral & heated single limb leak circuit
Pressure Setting: Will run iVAPS, ResMed's variant on AVAPS

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A thing that has helped me is to take notes of symptoms and complaints regarding sleep and using PAP. Maybe that helps to get docs to see some reason for your problems.

_________________
Duct tape carrying K9; the tape helps quiet stupid.
Dave K9DWB 73s


https://www.sleepfiles.com/OSCAR
http://www.apneaboard.com/wiki/index.php/OSCAR_Help
http://www.apneaboard.com/wiki/index.php/OSCAR_Chart_Organization


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Smitty61
Unread post  Post subject: Re: Oscar Data - Waking up right after Sleep  |  Posted: Thu Nov 26, 2020 12:51 am

Joined: Wed Nov 25, 2020 3:04 am
Posts: 4

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Well - I am on my own for the next 2 months until I see this new doctor. So I tried turning the flex off. And this thing blew up. Went from AHI of 2-4 the last two weeks (averaged 1 for 2 months before!) to now 22AHI.

What does it mean if the flex affects you this much?


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File comment: Zoomed in
20 mins.png
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DeltaBravo3.8
Unread post  Post subject: Re: Oscar Data - Waking up right after Sleep  |  Posted: Thu Nov 26, 2020 10:32 am
User avatar

Joined: Sat Jul 04, 2020 8:38 am
Posts: 477
Location: Waynesboro, Pennsylvania, USA
PAP Mask: F&P Vitera & Simplus, ResMed F20 N/P30i & old Amara View
PAP Machine: NIV ResMed Astral 150 soon
Humidifier: To be included with Astral & heated single limb leak circuit
Pressure Setting: Will run iVAPS, ResMed's variant on AVAPS

Offline
Flex is the Respironics attempt to add exhale relief as best as I understand it. Obviously, your events multiplied. With this as a result, I'd likely repeat what I say to others, consider getting a ResMed. With your pressures bookending 15 cmH2O I would consider the ResMed AirCurve 10 VAuto. Why? The pressures are high, and with the Respironics and the events still existing with what you're running, it will have to be even higher with this PAP. The VAuto is bilevel and has Pressure Support, which is better for treating your need as I see it. If you didn't need higher pressures, I would say get the AutoSet by ResMed which has EPR. EPR is Exhale Pressure Relief, it is the same as PS but it is acting in reverse, as EPR reduces pressures per its setting while PS adds to the pressure. Both are set by actual cmH2O.

I'll put it this way, with the research and support I've done for about 4 years on another apnea forum, the above suggestion is what I'd do for myself if I had the need you present. Most ResMed users say they notice a difference in how therapy feels and is treated, and state ResMed therapy is noticeably more comfortable. Part of the reason could be the faster responding ResMed allows the user to set pressures lower without hindering therapy. Lower pressure is typically more comfortable. ResMed does it better according to most I chat with. Some do like Respironics for reacting slower, but again most are treated better on ResMed.

_________________
Duct tape carrying K9; the tape helps quiet stupid.
Dave K9DWB 73s


https://www.sleepfiles.com/OSCAR
http://www.apneaboard.com/wiki/index.php/OSCAR_Help
http://www.apneaboard.com/wiki/index.php/OSCAR_Chart_Organization


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Smitty61
Unread post  Post subject: Re: Oscar Data - Waking up right after Sleep  |  Posted: Thu Nov 26, 2020 7:18 pm

Joined: Wed Nov 25, 2020 3:04 am
Posts: 4

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So it sounds like I may need a BiPap machine. Thank you. Now I need to figure out how to get my doctor to prescribe that.

It seems like most people have their events during REM. Mine seem almost exclusively (atleast problem wise) during stage 1.

Is that very unusual? Has anyone else had success treating that?


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