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chris8493
Unread post  Post subject: cpap without a drs note  |  Posted: Sun Mar 11, 2018 7:34 pm

Joined: Sun Mar 11, 2018 6:37 pm
Posts: 6
PAP Mask: Full
PAP Machine: Philips Respironics REMstar M series
Humidifier: Yes

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Hi,

First post, I'm in a bit of a pickle ( my fault ) and could use some advice.

Thanksgiving last year I fell asleep at my moms house and she told me she thought I had sleep apnea because I quit breathing while sleeping and was snoring loudly. She has apnea as well and she wanted to give me my dads cpap machine since he has passed away and wanted me to try it out. I brought it home cleaned it and had the most amazing 3 hours of sleep I have ever had. I have used the machine every night since then. I used to lay in bed for 3-4 hours every night waiting to fall asleep and then wake up every 2-3 hours. It was hell. I now average 6 hours straight of sleep every night and feel really good in the morning.

Once in awhile I'm getting a smell from the machine like its hot and I'm worried that it may soon give out on me. Obviously I don't have a prescription and some retailers require them but worse I don't have a dr that I could go to at the moment and I wouldn't know what to say to them if I did. I also have not touched any of the settings on the machine. I know they have to be set for each person using results from a sleep study.

I've been studying the forums for awhile and watching Lefty on youtube and trying to learn as much about this as I can. My old machine takes a proprietary smart card reader and special software to read. Neither of which I have. So I'm wanting to start using a machine that I can feed data into sleepyhead with.

Should I go to the Dr and fess up about what I've done? Should I lie my way through it? Should I just find a machine that I can buy without a script on ebay/CL? I know going to the dr is the right way to go, I just don't have good luck with them for anything. It takes a bit for me to warm up to new people and I find most drs don't have time for that. I understand.

TL:DR Skipped the Dr and Got a machine second hand, tried it, loved it, should I get professional help or learn the hard way?

Thanks


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diamaunt
Unread post  Post subject: Re: cpap without a drs note  |  Posted: Sun Mar 11, 2018 7:37 pm
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Joined: Wed Mar 02, 2016 2:26 am
Posts: 2100
Location: Dallas(ish)
PAP Mask: Resmed P10
PAP Machine: Resmed S9 vpap auto
Pressure Setting: 18/13-25/19

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I've been 'flying under the radar' for eight years now... craigslist/amazon/ebay are my friends.

That said, if you want to be legit, you could take one of Jason's handy home tests, get a rx, and be 'legit'.

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Sleepyhead Info
How to format your charts


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chris8493
Unread post  Post subject: Re: cpap without a drs note  |  Posted: Sun Mar 11, 2018 9:56 pm

Joined: Sun Mar 11, 2018 6:37 pm
Posts: 6
PAP Mask: Full
PAP Machine: Philips Respironics REMstar M series
Humidifier: Yes

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Thanks Diamunt. I was really hesitant to post here figuring that I would catch heck for considering trying to cowboy this apnea problem myself. Were you able to get your machine set using sleepyhead and are you confident in those settings? I don't understand the different machines for Bi-pap, cpap, vpap, biflex? How did you know which one to get?

I didn't know about Jasons home test, I'll look into it.

Thank you.


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diamaunt
Unread post  Post subject: Re: cpap without a drs note  |  Posted: Sun Mar 11, 2018 11:46 pm
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Joined: Wed Mar 02, 2016 2:26 am
Posts: 2100
Location: Dallas(ish)
PAP Mask: Resmed P10
PAP Machine: Resmed S9 vpap auto
Pressure Setting: 18/13-25/19

Offline
Nah, we're about self help.

I actually got my first machine set up pre-sleepyhead, when there was less data, and more guesswork... with sleepyhead, and an auto machine, it's easier than what I did...

As to whether I'm confident... pretty much, my typical ahi is less than 0.5.

CPAP = single pressure, doesn't change on it's own.
APAP = single pressure, but varies automatically in response to breathing anomalies during the night.
bilevel, also known by tradenames of BiPap (Respironics) VPAP (Resmed) and AirCurve (also Resmed) = a machine with different inhale and exhale pressures for each breath... There are a number of specialized bilevel machines, for more and more niche needs.

'biflex' is a comfort feature on Respironics BiPAPS, not a type of machine.

_________________
Sleepyhead Info
How to format your charts


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Daniel Gagner
Unread post  Post subject: Re: cpap without a drs note  |  Posted: Mon Mar 12, 2018 11:52 am
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Joined: Thu Aug 17, 2017 4:23 pm
Posts: 60
Location: Maine
PAP Mask: Respironics Dreamwear nasal
PAP Machine: Respironics Dreamstation 500
Humidifier: respironics
Pressure Setting: 9=13

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About a year ago I purchased a respironics machine on Amazon. That and the dreamwear mask was about $550 new. I used the machine, with low settings to get a general AHI reading and look at the graphs on sleepyhead. From there I tried different APAP pressure settings (right now at 9.5 and 13) and have been getting good results. My apnea is pretty straight forward though, General obstructive and I'm easily able to be a nose breather. Video, and my wife would describe holding my breath until I sucked in with a loud snore. The machine said about 15-20 times/minute. These days I'm under 5 and am averaging AHI about 1.6. Numbers I'm satisfied with and feeling good.

I don't know much beyond this but other types of apnea require more investigation. I figured; hey, breathing into a machine can't be dangerous to try and with the equipment and software I can see if I'm doing better. And I did.

My GP and a specialist for another matter I've seen recently have been very interested and applauded what I've done. They take notes when I describe it. I guess they have people who are forced for insurance reasons to live with it. They didn't know they had another option.

Your mileage may very....


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chris8493
Unread post  Post subject: Re: cpap without a drs note  |  Posted: Wed Mar 14, 2018 10:47 pm

Joined: Sun Mar 11, 2018 6:37 pm
Posts: 6
PAP Mask: Full
PAP Machine: Philips Respironics REMstar M series
Humidifier: Yes

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thanks guys. I've ordered up a new machine and hope to have it friday. I got into the provider mode on my old machine tonight to get an idea of where to set the new one.


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