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WanderLit
Unread post  Post subject: The beginning is in sight!  |  Posted: Fri Feb 23, 2018 4:24 pm
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My intake appointment is 12 days away (I've been waiting since just before Thanksgiving!) Today I received my intake paperwork in the mail. 16 pages of instructions, forms, and questionnaires.

It looks like my nights of not breathing right are finally coming to a... well... if not an end then at least to a middle! :roll:

Anyone want to place bets on how long I'll have to wait for my sleep study?

_________________
I wake up every day and I think, 'I'm breathing! It's a good day.'

~Eve Ensler


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audihere
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Sat Feb 24, 2018 12:22 am

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Hindsight will be 20-20. My experience is I should have just taken the bull by the horns. YMMV.

Good luck! I hope everything goes your way.


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TheLankyLefty
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Sun Feb 25, 2018 10:13 pm
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WanderLit wrote:
Anyone want to place bets on how long I'll have to wait for my sleep study?
What!?!? I thought you had already had your study and were waiting on the results and a follow up appointment!! You're just waiting for the initial appointment. Oh hell NO !!!!

I could have walked to you and done it faster. This is insane WanderLit. :shock: Please say I'm missing something.

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WanderLit
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Mon Feb 26, 2018 2:55 pm
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I'm afraid you've got it right.

On my birthday (November) I decided it would be my New Year's resolution to address my suspected OSA. I didn't do it immediately because I didn't want to pay my yearly insurance deductible twice. My beloved husband suggested I make my appointment immediately (he's tired of my snoring too) since we anticipated a wait before I could go through the referral process and get a new patient appointment. I'm so glad he did! I called my PCP and asked for the referral before Thanksgiving. A few days later I got a call from the sleep clinic to book my intake... for MARCH! :shock:

I looked into booking your services and though I could submit it to my insurance company, my out of network deductible is twice as much as my in-network deductible. So I'm playing the patient patient (which I'm not very good at) until I can get it done.

The time did help me get through the feelings of ambivalence about starting CPAP and I really have been making the most of my time. Not only did I learn a lot for my own benefit, I was able to help my father at the DME upgrading his sleep apnea equipment. (He's a success story, he's been a happy PAP-er for years and can't sleep without it.)

I'll keep you posted,

_________________
I wake up every day and I think, 'I'm breathing! It's a good day.'

~Eve Ensler


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WanderLit
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Wed Mar 07, 2018 5:32 pm
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I met my Sleep Doc and now it's moving much more quickly. I've got 2 sleep studies on the books. Diagnostic on March 25 and titration study on April 3. Now that I'm finally a patient, they are moving fast.

PS - I really like the doc.

_________________
I wake up every day and I think, 'I'm breathing! It's a good day.'

~Eve Ensler


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cindyY
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Wed Mar 07, 2018 9:06 pm

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Yea! WanderLit, congratulations! Good luck!


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AirMech74
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Thu Mar 08, 2018 7:08 am
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Nice. I'm still waiting to do mine...got a call yesterday and was told they finally approved my at-home study, just waiting for the final authorization to come in. Said it should be today...i'm tentatively scheduled to do it on the 20th and 21st of this month.


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WanderLit
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Wed Mar 28, 2018 6:58 pm
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Sleep study done! I feel like I slept hard. The sleep tech that watched over me couldn't tell me anything about the results except that I snore and grind my teeth at night (which, of course, I already knew). But she kept saying "if you have to come back..."

"If you have to come back, I'll be your tech again unless you really need a particular night when I'm not working." "If you have to come back, it will be just the same except we'll have to try on a few masks and help you get used to the CPAP." "If you have to come back you'll get a call next week to confirm a good appointment night." and "If you have to come back we'll see if we can put you in this same room again." etc.

I really think that if she didn't think I would be coming back she would have just said, "you'll get a call next week to let you know if you have to come back."

But of course, the whole reason I got a sleep study was because we were all pretty sure I had sleep apnea.

Titration study is scheduled for April 3. Unless someone calls to cancel, I'll be there for the next step.

_________________
I wake up every day and I think, 'I'm breathing! It's a good day.'

~Eve Ensler


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WanderLit
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Thu Mar 29, 2018 2:12 pm
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That was fast. Preliminary results = AHI 31.2

Details will be discussed at my Titration study after Easter. It took forever to get her but now things are moving FAST.

_________________
I wake up every day and I think, 'I'm breathing! It's a good day.'

~Eve Ensler


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Kittens McTavish
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Sun Apr 01, 2018 3:50 pm
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I've popped several buckets of popcorn in anticipation of the next installment! I look forward to your reports of how much better you feel waking up the first time you've used the machine.

_________________
How do I live? How do I breathe?
When you're not here, I'm suffocating
I wanna feel love run through my blood
Tell me is this where I give it all up?
For you, I have to risk it all
Cause the writing's on the wall

Sam Smith


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WanderLit
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Mon Apr 02, 2018 8:00 pm
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My titration study is tomorrow. I'm looking forward to not disappointing you!

I want this to work. I'm trying to have realistic expectations. I keep reminding myself it might take a while to get used to it. It might not be comfortable at first. I'll have to stick with it. It might take a while to find a mask that fits just right. etc. etc. etc.

But part of me just can't help but imagine a CPAP Cinderella story where the first mask fits perfectly and CPAP is some kind of luxurious spa treatment where I fall immediately into a deep restorative sleep and wake in the morning feeling 10 years younger.

It could happen... right?

_________________
I wake up every day and I think, 'I'm breathing! It's a good day.'

~Eve Ensler


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Kittens McTavish
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Tue Apr 03, 2018 4:30 am
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My DME told me you can't expect to be comfortable right away. He compared it to wearing glasses for the first time. It takes a little while before you stop seeing and feeling them on your face, but eventually they kind of become a part of you.

I promise you will notice a difference after the first night! It may not be huge, but you might just be surprised. :)

_________________
How do I live? How do I breathe?
When you're not here, I'm suffocating
I wanna feel love run through my blood
Tell me is this where I give it all up?
For you, I have to risk it all
Cause the writing's on the wall

Sam Smith


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AirMech74
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Tue Apr 03, 2018 12:07 pm
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i'm still waiting to see the light at the end of the tunnel...sleep study was done on 03/23 and 24....still waiting for results


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WanderLit
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Tue Apr 03, 2018 3:19 pm
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What an encouraging analogy, Kittens. Thank you. I do wear glasses. They did seem strange on my face the first few weeks I wore them. I couldn't stop messing with them and readjusting them. But from the first moment I put them on, the world looked completely different. I could take in so much more. And that night, I saw the stars for the first time- and craters of the moon. I love my glasses and they are a part of me now. (cat's eye frames are my signature look!)

Hang in there, Air! Much of the time organizations pad their deadline predictions and the results actually come in sooner than expected.

_________________
I wake up every day and I think, 'I'm breathing! It's a good day.'

~Eve Ensler


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AirMech74
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Tue Apr 03, 2018 5:37 pm
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They came in today.... Severe OSA had 79 events and O2 was lower than they wanted to see. Request for titration was submitted... Talked about possible bipap for me.


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WanderLit
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Wed Apr 04, 2018 3:34 pm
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I'm sorry it's so high, Air. But if your experience with titration is anything like mine, you'll enjoy a good night's sleep.

My titration study showed I do best between 8 and 10. They only had a limited selection of masks to try but I slept with the AirFit P10. The tech said I was in REM most of the night (REM rebound).

Now I just have to wait for the DME provider to give me a call. I do think I'll ask to try the Nuance Pro. I woke up with irritated cheeks in the night due to the straps. I'm sure I could get used to it if I have to but the Nuance Pro has the gel pads over the cheeks so I'd like to see if that is more comfortable.

I woke up without a headache and feeling alert. I didn't feel like I NEEDED a cup of coffee. But I had one anyway out of habit and for enjoyment. The difference wasn't super dramatic, but there was a difference. And the experience, while a strange, wasn't painful or awful in any way.

I really think this is going to work for me. I really think it's going to be a smooth adjustment.

_________________
I wake up every day and I think, 'I'm breathing! It's a good day.'

~Eve Ensler


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diamaunt
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Wed Apr 04, 2018 5:10 pm
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WanderLit wrote:
What an encouraging analogy, Kittens. Thank you. I do wear glasses. They did seem strange on my face the first few weeks I wore them. I couldn't stop messing with them and readjusting them. But from the first moment I put them on, the world looked completely different. I could take in so much more. And that night, I saw the stars for the first time- and craters of the moon. I love my glasses and they are a part of me now. (cat's eye frames are my signature look!)

Hang in there, Air! Much of the time organizations pad their deadline predictions and the results actually come in sooner than expected.

There are other analogies to glasses that are appropriate in the cpap world.

Like people that come in and say "I'm 100% compliant (how I hate that word), but I still feel like smurf"

and, just like glasses, if the glasses aren't right FOR YOU, then you can wear them all day long, and still not see worth a damn.

like glasses that have to be cut right for your eyes, the cpap has to be tuned to meet your needs, or it's ineffectual.

Of course, that's what we're here for ;)

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Wolfbane
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Mon Apr 09, 2018 5:18 pm

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I'm loving this thread, talk about positive attitude and hopeful expectations! I really hope both Air and Wander find their perfect fit and success is experienced. :)


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WanderLit
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Tue Apr 17, 2018 6:18 pm
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Gaaahhhhh!

I'm not fond of waiting. My primary care doctor was prompt with the referral, but it took months to get in to the Sleep Specialist. Once I had my intake appointment, I got my sleep study and titration study fast, but now it feels like forever for the handoff to the DME provider for my CPAP equipment and supplies.

Seriously though, It's only been 2 weeks and the sleep doc has to review the entire study, write a prescription, send it to the DME, and then the DME will go through the insurance company to verify coverage and benefits before they call me to come in. I was advised all that could take up to 6 weeks. Patience... patience... but I WANT IT NOW!

_________________
I wake up every day and I think, 'I'm breathing! It's a good day.'

~Eve Ensler


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LSAT
Unread post  Post subject: Re: The beginning is in sight!  |  Posted: Tue Apr 17, 2018 6:44 pm

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WanderLit wrote:
Gaaahhhhh!

I'm not fond of waiting. My primary care doctor was prompt with the referral, but it took months to get in to the Sleep Specialist. Once I had my intake appointment, I got my sleep study and titration study fast, but now it feels like forever for the handoff to the DME provider for my CPAP equipment and supplies.

Seriously though, It's only been 2 weeks and the sleep doc has to review the entire study, write a prescription, send it to the DME, and then the DME will go through the insurance company to verify coverage and benefits before they call me to come in. I was advised all that could take up to 6 weeks. Patience... patience... but I WANT IT NOW!


The doctor can do his thing in about 10 minutes.


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