Free CPAP Advice and Sleep Apnea Treatment Help Board • View topic - Newly Diagnoised with sleep apnea. 2 weeks now!
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breeka
Unread post  Post subject: Newly Diagnoised with sleep apnea. 2 weeks now!  |  Posted: Sun Sep 23, 2018 4:41 pm

Joined: Sun Sep 23, 2018 2:48 pm
Posts: 1
Location: Canada
PAP Mask: Resmed Airfit P10 for her
PAP Machine: Resmed
Pressure Setting: 9-10

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Hello,

I am so happy to find this site! I truly do need a hug. I am still waiting to see if i can get back to work as the Dr told the MTO here in Canada and i cant currently do my job it is a driving job. :( its a waiting game. I have the nasal pillow resmed airfit p10 and it is making my nose red and sore. it cost me $225.00 and the support from the tech's is just not there. They wouldn't let me try more then one mask. I still have to go back in and do another sleep test and also a daytime dark room? I am not even sure what that is. All they told me was they want to make sure i can keep myself awake. I don't understand what that has to do with sleep apnea? I have no support system literally no one.


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diamaunt
Unread post  Post subject: Re: Newly Diagnoised with sleep apnea. 2 weeks now!  |  Posted: Sun Sep 23, 2018 11:22 pm
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Joined: Wed Mar 02, 2016 2:26 am
Posts: 2072
Location: Dallas(ish)
PAP Mask: Resmed P10
PAP Machine: Resmed S9 vpap auto
Pressure Setting: 18/13-25/19

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I used lanolin on my nose for a few days... down here, it's in the nursing mothers section of the pharmacy... for sore nipples.

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Brandt
Unread post  Post subject: Re: Newly Diagnoised with sleep apnea. 2 weeks now!  |  Posted: Tue Sep 25, 2018 8:16 pm

Joined: Thu Dec 17, 2015 10:57 am
Posts: 55
PAP Mask: ResMed F10
PAP Machine: ResMed AirCurve 10 Vauto BiLevel running in standard mode not autoset
Humidifier: Built-in set at 4
Pressure Setting: 15/11 cmH2O

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I have a driving job and had dark room test. It was to make sure I could stay awake in dim room. To see how sleepy I was or not and the CPAP was working. I had sit in room like 45 minutes or 1 hour. 4 separate times with a 30 minutes break between each test. I was just to make sure you don't fall asleep just from being in a dark room.

Seems like they should let you try more then one mask. I thought 30 days for new mask was standard. We can return a mask during the first 30 days if we don't like it


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Phlier
Unread post  Post subject: Re: Newly Diagnoised with sleep apnea. 2 weeks now!  |  Posted: Fri Sep 28, 2018 5:23 pm

Joined: Fri Sep 28, 2018 5:21 pm
Posts: 2
PAP Mask: ResMed AirFit F20 with the memory foam seal
PAP Machine: ResMed 10 Autoset
Humidifier: ResMed 10 Autoset built in. Set to 8 (max for this machine)
Pressure Setting: 9.6/16.0

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Brandt wrote:
I have a driving job and had dark room test. It was to make sure I could stay awake in dim room. To see how sleepy I was or not and the CPAP was working. I had sit in room like 45 minutes or 1 hour. 4 separate times with a 30 minutes break between each test. I was just to make sure you don't fall asleep just from being in a dark room.

Seems like they should let you try more then one mask. I thought 30 days for new mask was standard. We can return a mask during the first 30 days if we don't like it


I apologize for starting this post off topic. :)

Brandt, I had to comment on your name. My first name is Brandt, too. Not often you see people named this, let alone spelled our way.

OP, I had the exact same problem with nasal pillows. Not only would my nose get red and sore, but I'd also get an infection right where the pillows touch. I solved this by using generic Neosporin (ointment antibiotic) that cleared it right up. I ended up not staying with nasal pillows, though, as I always ended up waking up in the night with air blowing out of my mouth, even if I was wearing a chin strap.

There are so many masks on the market now that you'll be able to find one that works for you. Just don't settle on something that's just kinda ok; keep trying different masks until you find one that truly works for you. My test for a mask that works: If I wake up in the morning and can't feel the mask on my face, it's a winner.


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mbushnoe
Unread post  Post subject: Re: Newly Diagnoised with sleep apnea. 2 weeks now!  |  Posted: Thu Nov 22, 2018 10:16 pm

Joined: Sat Aug 11, 2018 12:15 am
Posts: 20

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The "Daytime Dark Room" is most likely a reference to a Maintenance of Wakefulness test, or MWT. If you want to ease some anxiety by learning about it, you can read a sample protocol here: https://www.utmb.edu/policies_and_proce ... otocol.pdf
(Disclaimer: I just googled mwt protocol and chose the first one that was aasm-approved, so your experience may differ slightly, but this should at least give you a good idea of what to expect.)

Essentially, its designed to test your ability to stay awake during the day. They may have you do an overnight study with treatment the night before to ensure that you've had a good night sleep with minimal obstructive events, and that sleep deprivation will have minimal effect on the MWT. Then they put you in a dark room and remove stimulus (lights, tv, conversation, etc) and test your ability to remain awake on your own. Its usually 4 separate "trials" at 2 hour intervals and they want to see if you fall asleep, and if so, the amount of time it takes you to fall asleep. It's common for people who have had SDB hamper their ability to perform job functions such as driving or operating heavy machinery.

As far as the mask, definitely consider more comfortable options if it doesnt improve. Many people report discomfort in the nostrils on the pillows at first, because it is one of the most direct forms of pressure. Using a regular nasal mask or FF allows the pressure to rattle around a bit before it gets to you, whereas the pillows apply the pressure pretty much directly to the nostril. It's probably our most controversial mask at our lab; the people who like it love it, and the people who dont hate it. Fortunately, the market for masks has grown a lot, and there are a ton of different options available to you, but I'm sorry to hear that your tech was not receptive to your needs as far as trying other masks. (If you were fitted during the overnight,) keep in mind that they are sometimes working with limited time/sleep time and inventories, and that can have an impact on their decisions!

I hope that helps, and good luck!


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