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LynneM
Unread post  Post subject: Alpha intrusions  |  Posted: Sat May 19, 2018 5:50 pm

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Hi I wasn't sure where to put this subject but I basically found out in my last sleep study ( where I wore a bipap machine the entire study) that I had frequent alpha intrusions. I tried cpap for 4 months and bipap for another two months ( I think I gave it a fair shot and was very compliant) and although my apneas were down to nearly 1 or 2 a night ( from 22 an hr) I still woke up exhausted ( now I know it's because the alpha intrusions prevent me from ever getting restorative sleep). I have pretty much given up cpap/ bipap because I saw no benefits and coupled with all the problems I struggled with using the machine.
But I would like to know if anybody else suffers from alpha intrusions? And what kind of medications were you prescribed? And what did you like or dislike about the medication? Is this a hopeless situation where I will never get restorative sleep? I'm worried because I definitely have that brain fog and my memory/concentration are slowly getting worse.
Does anyone out there have success stories with alpha intrusions and could give me a little hope?
Thank you
Lynne


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LSAT
Unread post  Post subject: Re: Alpha intrusions  |  Posted: Sat May 19, 2018 7:22 pm

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Found this... http://answers.sleepfoundation.org/grou ... -intrusion


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LynneM
Unread post  Post subject: Re: Alpha intrusions  |  Posted: Sat May 19, 2018 9:46 pm

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Thank you! I was thinking of asking my new primary if I could try gabapentim ( neurotin ) because I'm always in back pain too and I like that that drug has been around a while. Trazadone I I already take with klonapin for insomnia but I don't take consistently... I heard this actually helps increase stage 3 and 4 of sleep... Maybe I should up that a little? Xyrem I hadn't heard of using? My new primary is very cool. I told him I was done with the sleep clinic.(they are so disorganized). And when my new doctor wanted me to try a different clinic I told him I'm so exhausted I don't have the energy to start back up ( the 1st sleep clinic put me through 3 sleep studies in half a year each time saying "they needed a better picture of my sleep architecture " but wouldn't change their game plan in helping me. It wasn't until I became my own advocate and sent for my records that I saw how much they didn't tell me .. Like the sleep tech reporting I had frequent alpha intrusions while I'll the bipap machine ( meanwhile the physician 's assistants made me feel like I was being difficult and crazy when I told them I was still exhausted after 6 mos on cpap/ bipap. I would have never known about my alpha intrusions if I hadn't sent for my own records. But my new primary sensed my frustration about going to another sleep clinic ( I'm just drained)... So he is reaching out to a friend in sleep medicine and will talk with him because he admits he doesn't know a lot about alpha intrusions ( which was refreshing to me). So I am trying to do research on my side too! Any experiences with alpha intrusions and help or tips for dealing are definitely welcome! Thank you for the link!!!


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TheLankyLefty
Unread post  Post subject: Re: Alpha intrusions  |  Posted: Mon May 21, 2018 3:12 pm
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LynneM wrote:
Is this a hopeless situation where I will never get restorative sleep? I'm worried because I definitely have that brain fog and my memory/concentration are slowly getting worse.
From my experience in the sleep lab this is seen on every patient with Fibromyalgia. Here is a page from my website with examples: http://freecpapadvice.com/fibromyalgia-and-sleep

Also, anxiety/depression medications are REM inhibitors which would explain the brain fog and memory concentration problems. I've had numerous conversations about this with my neurologist sleep specialist. You almost have to pick your poison. I don't mean to be the harbinger of bad news. I just spoke with him about this in the last 6 months. I'll chat with him again tomorrow and see if there have been any promising changes.

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LynneM
Unread post  Post subject: Re: Alpha intrusions  |  Posted: Mon May 21, 2018 9:03 pm

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Thank you Jason! Yes is you learn anything new it would be much appreciated! It explains why cpap/ bipap never helped me( I still woke up exhausted every morning even though my apneas were down to non- existent). It really sucks when even my own sister says " I'm not like you I have to sleep 8 or 9 hrs a night or I won't function the next day". I get mad ... I don't choose sleep apnea, insomnia starting at a very young age and frequent alpha intrusions and I really don't function very well the next day. I would give anything to feel 1 day of rest. I will read any material you send my way. Feeling a little more hopeful I finally seem to have found a physician who cares and is making an effort to learn about alpha intrusions. Who would have thought a sleep forum has given me the most comfort and makes you feel the least crazy!


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TheLankyLefty
Unread post  Post subject: Re: Alpha intrusions  |  Posted: Tue May 22, 2018 9:30 pm
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LynneM wrote:
Who would have thought a sleep forum has given me the most comfort and makes you feel the least crazy!
I didn't get a chance to speak with him today. The timing is tough since we are preparing for an AASM site visit for reaccreditation. Lots of business talk and making sure all the i's are dotted. He does come in twice a week. I may just email him so that he can answer at his leisure. I haven't forgotten about you.

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LynneM
Unread post  Post subject: Re: Alpha intrusions  |  Posted: Tue May 22, 2018 9:50 pm

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Thanks Jason! Very grateful... That someone who runs a forum with thousands of members would take the time to ask a specialist for me. You have done more for me than anyone at the sleep disorder clinic that I had been going to ( I won't be going back because of the frustrating chain of events I was put through). I'm very glad I stumbled on this forum!


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LynneM
Unread post  Post subject: Re: Alpha intrusions  |  Posted: Thu Jun 14, 2018 4:43 pm

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My new primary made my go to a new sleep specialist (even though I swore I was done with them because of my horrible experiences with the first clinic) and the new sleep specialist looked over my 3 sleep studies from last year . He found more that the first clinic failed to tell me about ( unfortunately they haves very good sleep dr who only sees you only once and then you were left in the hands of 2 newbie pa's). On top of moderate sleep apnea, severe insomnia, alpha intrusions ( I had to ask what those were after sending for my records) the new sleep dr saw that I had significant periodic limb movements and I think he was sort of in shock that they weren't mentioned to me ( he didn't come out and say it but said it roundabout). He told me it was not restless leg syndrome because those happen when your awake, but are sort of like it but when you are asleep.He tried to explain it to me but I still don't get why moving around in your sleep is such a disturbance. Is it because it takes you out of deep sleep or sort of wakes you up? My primary already started me on a minimal dose of gabapentin (300mg ) for alpha intrusions and for the slipped disc in my back and hopefully will help with insomnia to boot. But my new sleep dr says this is a very small dose and says I can take more. Does anyone have experience with periodic limb movement? I feel pretty dismayed and feel like I will never know what it feels like to feel human. I wake up exhausted and struggle through work and other tasks and wonder how people who can fall asleep instantly and have no sleep disorders feel like? Does anyone else have multiple sleep problems and really struggle?
Thanks for letting me vent.


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