Free CPAP Advice and Sleep Apnea Treatment Help Board • View topic - Problem with apenas after one year of CPAP and BiPap use
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Buschman
Unread post  Post subject: Problem with apenas after one year of CPAP and BiPap use  |  Posted: Sat May 11, 2019 5:45 pm

Joined: Sat May 11, 2019 5:13 pm
Posts: 4
PAP Mask: Simplus Fullface
PAP Machine: Resmed Aircurve 10
Pressure Setting: 10/6

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Hello: I have been battling sleep apnea for about 6 years and switched to a CPAP a year ago from an oral appliance. In the sleep lab my apneas were totally eliminated but at home I was still getting 10-15/hr. About 2 months ago after another sleep study my sleep dr switched me to a BiPap and put my setting at 10/6 and now my apneas are only worse, about 15-20/hr. My dr continues to adjust my pressure settings and I am quite disturbed since it just seems like trial and error at this point. Has anyone else had the same experience? I have full compliance with no leakage so I am quite dumbfounded. Should I try to experiment by setting my own pressures? Thanks for any help. Richard


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diamaunt
Unread post  Post subject: Re: Problem with apenas after one year of CPAP and BiPap use  |  Posted: Sat May 11, 2019 5:49 pm
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Joined: Wed Mar 02, 2016 2:26 am
Posts: 2363
Location: Dallas(ish)
PAP Mask: Resmed P10
PAP Machine: Resmed S9 vpap auto
Pressure Setting: 18/13-25/19

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People typically get the best results by monitoring their on data, interpreting the results, and making adjustments based on that.

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Buschman
Unread post  Post subject: Re: Problem with apenas after one year of CPAP and BiPap use  |  Posted: Sat May 11, 2019 6:48 pm

Joined: Sat May 11, 2019 5:13 pm
Posts: 4
PAP Mask: Simplus Fullface
PAP Machine: Resmed Aircurve 10
Pressure Setting: 10/6

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Thanks diamaunt. Since I have a very experienced sleep specialist I am dismayed that I need to take over my own treatment. Is it unusual for people to have these problems? My dr says I am an unusual case as usually everyone who can “tolerate” the CPAP does fine after the sleep study! I will do as you suggest! Thanks again, Richard


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LSAT
Unread post  Post subject: Re: Problem with apenas after one year of CPAP and BiPap use  |  Posted: Sat May 11, 2019 7:08 pm

Joined: Tue Sep 05, 2017 9:40 am
Posts: 373
Location: WI
PAP Mask: Simplus
PAP Machine: S9 Autoset
Humidifier: H5i
Pressure Setting: 12-20

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Sounds like your "very experienced" sleep doctor is a dud.


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Buschman
Unread post  Post subject: Re: Problem with apenas after one year of CPAP and BiPap use  |  Posted: Tue May 14, 2019 12:02 pm

Joined: Sat May 11, 2019 5:13 pm
Posts: 4
PAP Mask: Simplus Fullface
PAP Machine: Resmed Aircurve 10
Pressure Setting: 10/6

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Hi: It turns out I do not have a SD card in my machine so I am going to buy one and then install the Sleepyhead software and check it out. I note there are people on this forum who help evaluate the info as I have looked at the graphs and am pretty clueless how I can use them to help me figure out how to better treat my sleep apnea. It is very frustrating seeing my dr once a month and having him do a minor change based on the info he gets remotely. I live in Santa Barbara and would gladly pay someone to help me determine how to analyze the data. Thanks in advance, Richard


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diamaunt
Unread post  Post subject: Re: Problem with apenas after one year of CPAP and BiPap use  |  Posted: Tue May 14, 2019 12:11 pm
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Joined: Wed Mar 02, 2016 2:26 am
Posts: 2363
Location: Dallas(ish)
PAP Mask: Resmed P10
PAP Machine: Resmed S9 vpap auto
Pressure Setting: 18/13-25/19

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Buschman wrote:
Thanks diamaunt. Since I have a very experienced sleep specialist I am dismayed that I need to take over my own treatment.

You should be overjoyed... not dismayed. By taking over your own treatment, you're putting it in the hands of someone who (should) really care about your well being, not just paying a few minutes of attention every few months while awash in a sea of others. Plus, you probably don't have to pay yourself a hefty fee each time you see yourself. An involved patient is a better patient.

Think about people with diabetes, they *routinely* monitor their condition, and adjust their medication dosages, frequently multiple times a day... they don't leave their day to day health in the hands of a doctor.... (at least, not if they want to stay healthy).

Buschman wrote:
Is it unusual for people to have these problems?

all to common.
Buschman wrote:
My dr says I am an unusual case as usually everyone who can “tolerate” the CPAP does fine after the sleep study! I will do as you suggest! Thanks again, Richard

And your dr's attitude is why the failure rate on cpap is so very high....

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diamaunt
Unread post  Post subject: Re: Problem with apenas after one year of CPAP and BiPap use  |  Posted: Tue May 14, 2019 12:13 pm
User avatar

Joined: Wed Mar 02, 2016 2:26 am
Posts: 2363
Location: Dallas(ish)
PAP Mask: Resmed P10
PAP Machine: Resmed S9 vpap auto
Pressure Setting: 18/13-25/19

Offline
Buschman wrote:
Hi: It turns out I do not have a SD card in my machine so I am going to buy one and then install the Sleepyhead software and check it out. I note there are people on this forum who help evaluate the info as I have looked at the graphs and am pretty clueless how I can use them to help me figure out how to better treat my sleep apnea. It is very frustrating seeing my dr once a month and having him do a minor change based on the info he gets remotely. I live in Santa Barbara and would gladly pay someone to help me determine how to analyze the data. Thanks in advance, Richard

most of the graphs aren't of any use... the ones to pay attention to are:

flags
flow rate
pressure
leaks
snore
flow limitations.

figuring out the basics isn't that difficult, with a little practice, it just looks intimidating at first.

_________________
Sleepyhead Info
How to format your charts


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Buschman
Unread post  Post subject: Re: Problem with apenas after one year of CPAP and BiPap use  |  Posted: Tue May 14, 2019 12:39 pm

Joined: Sat May 11, 2019 5:13 pm
Posts: 4
PAP Mask: Simplus Fullface
PAP Machine: Resmed Aircurve 10
Pressure Setting: 10/6

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Thanks again Diamount! My brain is so foggy I have trouble even motivating to get the card and install the software, let alone analyzing the data. But baby steps is better than doing nothing. My case is more complicated as I also have periodic limb movement disorder and need to take both benzos and opiates to treat that, which likely is compounding my sleep apnea problem.

I agree with you about my dr. I don’t think he is a quack and thankfully I have good insurance, but relying on him exclusively at this point is not cutting it.

Keeping my fingers crossed!


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