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Marsh
Unread post  Post subject: Waking up Tired with CPAP  |  Posted: Sun Jan 04, 2015 10:26 am

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I am a new user,about six weeks now. I adjusted fairly easily to the mask, maybe because I was so motivated to wake up feeling rested. I wake up every three hours or so either because I need to use the bathroom or because the mask is leaking. I'm not really sure which is the reason for waking up. I have to turn off machine and put mask back on to get rid of leaks and sometimes I can't seem to get it right in the middle of the night and have frustrating nights. But the big issue is how I feel. Two thirds of the mornings I wake up still feeling tired and the other third I wake feeling rested and the best I've felt in years. I can discern no reason for this. I keep my own casual log on what happened that night, how many hours using the mask and how I feel in am. I see no correlations . I can use the mask for 4 hours and feel great and 8 hours and be exhausted the next day? Anyone have any ideas? I think I should make appt with sleep medicine physician. So far I've only seen my primary who ordered the home sleep study and equipment. Thank you!! Ps. dME respiratory therapist doesn't know. I've talked to him.


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TheLankyLefty
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Sun Jan 04, 2015 11:57 am
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Marsh wrote:
I keep my own casual log on what happened that night, how many hours using the mask and how I feel in am. I see no correlations . I can use the mask for 4 hours and feel great and 8 hours and be exhausted the next day? Anyone have any ideas?
Go to Sourceforge.net and search for SleepyHead. Download that and use it to upload some screenshots here. That way we have some data to go off of. Makes it easier to pinpoint the problem.

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Marsh
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Sun Jan 04, 2015 12:37 pm

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We did down download data. Wanted to send you month of data but can't attach it. Still trying. Daughter running out of patience .


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kaiasgram
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Sun Jan 04, 2015 1:02 pm
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You can take a screenshot of your data and upload it to a free site like imgur or Photobucket. When you do you'll see an image or BBC code which you can copy and paste into a post here. It will just look like text until you click on Preview or Submit.


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Marsh
  Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Mon Jan 05, 2015 5:08 pm

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I am not sure I can figure out how to upload it and it's in multiple screen shots cause I couldn't get it all in one. But it's readable. If you are willing to send me your email, I can send you the three days of data. Each day is in one folder. I sent to The site admin but I'm not sure he received. If you are willing, I would be appreciative. I actually slept well last night. First time in about 7 days. It was so nice. But why last night?


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TheLankyLefty
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Mon Jan 05, 2015 9:04 pm
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Marsh wrote:
I sent to The site admin but I'm not sure he received. If you are willing, I would be appreciative.
I did receive, but I wasn't able to open them. :?: Got some strange message.

You can pull it up on your computer screen and do a screenshot. (search screenshots for your particular model....mine is Windows button and "prt sc" button) These will be saved as a JPG file. You can upload these to this forum. Do this by selecting browse under the text box when you reply to posts (or start them). Then you have to select the "Add the file" so that it uploads. Really pretty quick and easy.

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Marsh
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Tue Jan 06, 2015 7:13 pm

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Hi. I'll try again over the weekend. I'm exhausted when I get home from work so it's a vicious cycle. I had one good night of sleep in 7, but who's counting. Once you know what it's like to wake up rested it's even harder to go back. I finally got an appt with a sleep med physician but its in 6 weeks. I tried several sleep med groups but that was the soonest. Is the person any good? Who knows. dME company not helpful. I'm on my second mask and they say the one I have is the best fit for me...they say it's not the mask. I have a small nose and bridge. I liked the first mask better but it leaked like crazy. I have no idea what I did wrong with these files and in emailing. I'll try again, I'm cranky all the time and people don't like it. Me neither.


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TheLankyLefty
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Sat Jan 10, 2015 11:51 am
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Marsh wrote:
I'll try again, I'm cranky all the time and people don't like it.
Alright.....but you come across as very sweet online. ;) :)

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Marsh
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Sun Jan 11, 2015 1:02 pm

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Marsh
Unread post  Post subject: Re: Waking up Tired with CPAP-Sceen shots uploaded  |  Posted: Sun Jan 11, 2015 1:19 pm

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Hello Lanky Left and Everyone!! I think I just uploaded a day or more than one days but I don't see everything I uploaded here. Let me know what you see.
I see how to take screen shots from the sleepyhead software but there is so much data you have to do it several times for each day. I don't see how to fit it all on one screen shot. I am just not a tech person! Really.
I am sweet btw, but I am also cranky from not sleeping. Didn't sleep last night but did the three nights prior and I just don't know the heck why. I just looked at 40 days of data and don't see an obvious correlation between days I slep fine and days I didn't. Should there be a correclation with AHI? More days not sleeping than sleeping well by 3:1.
Any insight you can give me would be good so I can make some fine tuning here (if possible) The last three days I felt like I slept well, I felt like I had success readjusting my mask when I felt air going into my eyes or woke up and then felt the air. Usually up every three hours or so.


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TheLankyLefty
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Sun Jan 11, 2015 10:38 pm
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Hello!

Nice to hear from you.

I don't see leak data, but that doesn't seem to matter with regards to minimizing Sleep Disordered Breathing. You have practically no events.

The data looks extremely clean. My concern is : Why is the pressure ramping upt (increasing) so quickly when there are no events being seen?

My suspicion is that it's a big ol' leak and it has to increase that high to "catch up with" the leak.

The other issue (which is probably related to the above if my suspicions are correct) is why aren't you able to wear it longer. You look like your sleep is very well consolidated, but why is it coming off?

So to go back to your original post, I think the secret lies in controlling the leak. Have you tried a full face mask. This may be a nice thing to try. The mask isn't great for everyone, but the results are usually worth it when you wake up feeling rested.

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Marsh
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Mon Jan 12, 2015 10:12 am

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I always have to get up every three hours and use the rest room and the mask comes off . Many nights I have a leak I can't get to stop, get frustrated and throw off the mask. Then when I wake up I put the mask back on and try to add more sleep time with the mask. That happens a lot.
My mask which I find uncomfortable is already A full face. It barely covers my mouth however and once in awhile I've noticed my mouth hanging out of it. It's a small . I first tried a f and p sim plus which I really found comfortable but it had constant leaks at the nose. I have a small nose and that's where my leaks come from although significantly less than the sim plus. I had a small in that too. Dme provider had no other ideas for me other than mask I have now. Any suggestions for a different full face for small nosed folks? A more comfortable mask would help me use it more consistently.

Can I send you a different day of data and I'll make sure to send you the leakage. Or a few days? Maybe you'll see why I'm tired? I could send you a day I felt good and one when I felt bad.

Still don't know why some days I'm rested and others still exhausted. I don't see the correlation when I look at the data and how I feel. I have 44 days of data now. But it doesn't jump out at me. Of course I really can't interpret this sleepyhead data.

Thanks for your time and expertise!!!


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TheLankyLefty
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Mon Jan 12, 2015 2:38 pm
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Marsh wrote:
I could send you a day I felt good and one when I felt bad.
I like this one! :)

Marsh wrote:
Still don't know why some days I'm rested and others still exhausted.
Sometimes the answers are found in the data.

Marsh wrote:
I don't see the correlation when I look at the data and how I feel.
Sometimes they aren't related. There is more to feeling rested and just sleep. Obviously sleep is a huge part of it, but there are plenty of other medical conditions that can cause this as well.

Marsh wrote:
Thanks for your time and expertise!!!
Hey......no sweat! ;)

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Marsh
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Mon Jan 12, 2015 5:40 pm

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Thanks so much. Do you have a mask suggestion for me based on previous post? I'd like to get more comfortable.


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TheLankyLefty
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Mon Jan 12, 2015 10:26 pm
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The Quattro FX is a horrible mask.

The Airfit F10 is a good one, similar in style, but better in design than the Quattro FX.

Nothing specifically for a small nose, but you may want to take a look at the ResMed Mirage Liberty. It is a full face mask, but the nose isn't covered. Instead there are nasal pillows. This may be of interest?

The Hybrid (I think it's owned by RespCare still) is a similar design to the Liberty.

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tan
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Tue Jan 13, 2015 12:10 pm

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TheLankyLefty wrote:
Hello!

Nice to hear from you.

I don't see leak data, but that doesn't seem to matter with regards to minimizing Sleep Disordered Breathing. You have practically no events.

The data looks extremely clean. My concern is : Why is the pressure ramping upt (increasing) so quickly when there are no events being seen?

Snoring and flow limitations push pressure higher, don't they?


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tan
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Tue Jan 13, 2015 1:33 pm

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low count apnea/hypoapnea events, quite wild flow limitations, all of which couple with typical symptoms -- smells UARS to me


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TheLankyLefty
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Tue Jan 13, 2015 11:50 pm
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tan wrote:
Snoring and flow limitations push pressure higher, don't they?
Yes. There's not enough data to say these are present though.

It's just as likely there is a mask/mouth leak that is causing vibrations picked up as snores. (happens in lab all the time....just today in fact)

tan wrote:
low count apnea/hypoapnea events, quite wild flow limitations, all of which couple with typical symptoms -- smells UARS to me
Could be. But could also just be that the treatment pressure is suboptimal, either from it not being enough or the seal of the mask, or integrity of the mouth. That period of time can also be wake.

The Flow Rate is very consistent. UARS is pretty easy to see with the all night trend for the flow rate being jagged. This you could put a straight edge to.

The graph showing flow limitations isn't the same (to me) as seeing the raw waveform. Zooming in on that cluster of flow limitations may help identify the validity of it.

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Marsh
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Wed Jan 14, 2015 3:56 pm

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Well you are above my head here with the discussion about why I'm still tired. I made progress though cause I got a new mask yesterday I went home with a Quattro air. It is moe comfortable than the Quattro fx and did not leak at the nose. Had one wake up due to a leak at cheeks that I couldn't get to stop but but it already 6am so I bagged the mask. So I will send new screenshots to the two of you with new mask and hopefully less leaking. I hope to figure out putting on the mask or adjusting during night to any leaks. I had to be obnoxious with the dme company. They wanted to charge me but I said they weren't trying hard enough with me and they can see I'm compliant in mask use!!!


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tan
Unread post  Post subject: Re: Waking up Tired with CPAP  |  Posted: Wed Jan 14, 2015 4:13 pm

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It is just when I had a flow limitation chart even less intense, I had quite a distorted flow rate curve


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