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konrad
Unread post  Post subject: Frustrated  |  Posted: Fri Nov 30, 2018 1:36 pm

Joined: Mon Oct 17, 2011 8:59 am
Posts: 35
Location: Silver Spring, MD
PAP Mask: Respironics DreamWear
PAP Machine: Philips Dreamstation Pro
Philips Dreamstation Pro
Humidifier: Philips Dreamstation Humidifier
Pressure Setting: 13

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So this is just general venting. I was on CPAP a few years ago with no problems--pressure was 6 or 8, I used a Quattro FX full face mask, no worries. This time they've upped my pressure to 13. I was using the Dreamwear nasal pillow with no problems while they figured out what final pressure to put me on. It was fine until they increased me to 13, but now it blows my mouth open every night. I've tried sleeping with a pillow under my chin, but that's only sometimes effective. I tried the old full face mask (with a new silicone piece), but it leaks like crazy unless i tighten it to the point that I'm afraid it's going to permanently bond to my face. Even then, I had nights with a 50% leak rate. I'd blame my beard, but most of the leaking was around the bridge of my nose. I had high hopes for the Dreamwear full face mask, and tried it for the first time last night. I really had to tighten it to stop the leaks, and even then I woke up about 2 1/2 hours later with air going all over the place. I threw it on the floor and just slept without the mask for the rest of the night.

In the last two weeks, I think my best night on the machine was 4 1/2 hours. I'm thinking about trying a chin strip with the pillows again, but the last time I was on therapy a chin strap didn't do anything for me. I can't keep going to my sleep therapist because it involves taking time off work. I'm more tired than I started. Beginning to think this isn't worth it.


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LSAT
Unread post  Post subject: Re: Frustrated  |  Posted: Fri Nov 30, 2018 2:34 pm

Joined: Tue Sep 05, 2017 9:40 am
Posts: 689
Location: WI
PAP Mask: F & P Simplus
PAP Machine: Airsense 10 Autoset
Pressure Setting: 12-20

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Take control of your own therapy...lower your pressure and go to sleep.
You are using an auto machine...is it set to fixed pressure of 13 or is 13 the minimum pressure setting?


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konrad
Unread post  Post subject: Re: Frustrated  |  Posted: Fri Nov 30, 2018 2:40 pm

Joined: Mon Oct 17, 2011 8:59 am
Posts: 35
Location: Silver Spring, MD
PAP Mask: Respironics DreamWear
PAP Machine: Philips Dreamstation Pro
Philips Dreamstation Pro
Humidifier: Philips Dreamstation Humidifier
Pressure Setting: 13

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It's fixed at 13. It was set to self adjust, but when I went in for a follow-up titration, they found that 13 was the point at which I didn't have any events at all. Since my auto-adjusting machine hadn't been getting anywhere near that pressure, my doctor decided I should just have a fixed high pressure. According to her, I might be having events where my throat is partially closed and the machine doesn't pick up on it. Makes sense, but so far the setting of 13 isn't working for me.


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LSAT
Unread post  Post subject: Re: Frustrated  |  Posted: Fri Nov 30, 2018 2:47 pm

Joined: Tue Sep 05, 2017 9:40 am
Posts: 689
Location: WI
PAP Mask: F & P Simplus
PAP Machine: Airsense 10 Autoset
Pressure Setting: 12-20

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konrad wrote:
It's fixed at 13. It was set to self adjust, but when I went in for a follow-up titration, they found that 13 was the point at which I didn't have any events at all. Since my auto-adjusting machine hadn't been getting anywhere near that pressure, my doctor decided I should just have a fixed high pressure. According to her, I might be having events where my throat is partially closed and the machine doesn't pick up on it. Makes sense, but so far the setting of 13 isn't working for me.


If you can't sleep with the pressure at 13, the CPAP is doing you no good... LOWER THE PRESSURE..Take control of your therapy and learn how your machine works. You will be using it for the rest of your life.


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konrad
Unread post  Post subject: Re: Frustrated  |  Posted: Sat Dec 01, 2018 5:26 pm

Joined: Mon Oct 17, 2011 8:59 am
Posts: 35
Location: Silver Spring, MD
PAP Mask: Respironics DreamWear
PAP Machine: Philips Dreamstation Pro
Philips Dreamstation Pro
Humidifier: Philips Dreamstation Humidifier
Pressure Setting: 13

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So all the last month I've been wrong--I have a CPAP machine, not APAP. I've set the pressure to 8 and I'll call my doctor on Monday. Hopefully I'll get at least some benefit in the meantime.


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LSAT
Unread post  Post subject: Re: Frustrated  |  Posted: Sat Dec 01, 2018 6:14 pm

Joined: Tue Sep 05, 2017 9:40 am
Posts: 689
Location: WI
PAP Mask: F & P Simplus
PAP Machine: Airsense 10 Autoset
Pressure Setting: 12-20

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konrad wrote:
So all the last month I've been wrong--I have a CPAP machine, not APAP. I've set the pressure to 8 and I'll call my doctor on Monday. Hopefully I'll get at least some benefit in the meantime.


Why do you have to report to your doctor...Use the machine at 8-9 for a while and see what happens. If everything is good, maybe increase to 10 in a week. Then you will have something to tell your doctor on your next visit. Right now you have nothing specific to tell him.


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Pugsy
Unread post  Post subject: Re: Frustrated  |  Posted: Sat Dec 01, 2018 6:33 pm
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What is the model number of your machine?
It's on a little sticker on the blower...starts with DSX..

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diamaunt
Unread post  Post subject: Re: Frustrated  |  Posted: Sat Dec 01, 2018 10:16 pm
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Joined: Wed Mar 02, 2016 2:26 am
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Location: Dallas(ish)
PAP Mask: Resmed P10
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Pressure Setting: 18/13-25/19

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Pugsy wrote:
What is the model number of your machine?
It's on a little sticker on the blower...starts with DSX..

And says REF in front of it.

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konrad
Unread post  Post subject: Re: Frustrated  |  Posted: Sun Dec 02, 2018 12:43 pm

Joined: Mon Oct 17, 2011 8:59 am
Posts: 35
Location: Silver Spring, MD
PAP Mask: Respironics DreamWear
PAP Machine: Philips Dreamstation Pro
Philips Dreamstation Pro
Humidifier: Philips Dreamstation Humidifier
Pressure Setting: 13

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DSX400H11C


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diamaunt
Unread post  Post subject: Re: Frustrated  |  Posted: Sun Dec 02, 2018 2:46 pm
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Joined: Wed Mar 02, 2016 2:26 am
Posts: 2572
Location: Dallas(ish)
PAP Mask: Resmed P10
PAP Machine: Resmed S9 vpap auto
Pressure Setting: 18/13-25/19

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You have a "Dreamstation Pro" NOT a "Dreamstation CPAP", please update your equipment in the profile.

It is a fixed, not auto pressure machine, that is correct.

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SleepyHead566
Unread post  Post subject: Re: Frustrated  |  Posted: Tue Dec 25, 2018 2:56 pm

Joined: Sat Feb 24, 2018 11:48 pm
Posts: 76
PAP Mask: Airtouch F20
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The problem with CPAP is that it's a treatment not a cure and with a cure it takes multiple point of entry to help fix a problem. Finding the point of origin is extremely difficult which is where the problem first originated and it's hard to tell if it's the source or not. Problem with fixing the problem is that it's expensive and time consuming and very painful. if you are willing to repair the underlying problem and go through the pain, then it's worth it.


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diamaunt
Unread post  Post subject: Re: Frustrated  |  Posted: Tue Dec 25, 2018 8:24 pm
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Joined: Wed Mar 02, 2016 2:26 am
Posts: 2572
Location: Dallas(ish)
PAP Mask: Resmed P10
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Pressure Setting: 18/13-25/19

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The same could be said of eyeglasses.

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SleepyHead566
Unread post  Post subject: Re: Frustrated  |  Posted: Tue Dec 25, 2018 9:26 pm

Joined: Sat Feb 24, 2018 11:48 pm
Posts: 76
PAP Mask: Airtouch F20
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diamaunt wrote:
The same could be said of eyeglasses.


I like to tackle this from a Scientific way and breakdown the problem and simply it into smaller chunks to find a plausible solution but sleep apnea/UARS is all related to the Nose/Throat and your teeth and your jaw structure. If your teeth are f...d, and not straight or forward facing, you'll likely face issues with breathing. Instead you have stupid doctors who are suppose to trust, dangerously prescribing drugs(antidepressants/sleep) and other psychotic drugs, because apparently drugs help fix the problem. No they don't. They just make things worse. Sleep apnea is destructive but I have found that music calms my nerve and helps bring me joy and happiness and help me fight through the pain and the solution to the problem.

This disease is infact spreading but I reckon that most aren't aware that they have it. I would say that majority of people that have gotten an infection on the nose or a cold, will get this.


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SleepyHead566
Unread post  Post subject: Re: Frustrated  |  Posted: Tue Dec 25, 2018 9:48 pm

Joined: Sat Feb 24, 2018 11:48 pm
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No wonder drug abuse and alcohol abuse is so high. I reckon that this disease is the root cause of it and most people don't even know it but hey, let's fight fire with fire right? The sad part about all this? No one believes me or listens to me even though I know I am right with absolute certainty.


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diamaunt
Unread post  Post subject: Re: Frustrated  |  Posted: Wed Dec 26, 2018 2:37 am
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> I like to tackle this from a Scientific way

Is that what you call it.

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diamaunt
Unread post  Post subject: Re: Frustrated  |  Posted: Wed Dec 26, 2018 2:39 am
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SleepyHead566 wrote:
even though I know I am right with absolute certainty.


*backs away slowly, furtively looking for an exit.*

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SleepyHead566
Unread post  Post subject: Re: Frustrated  |  Posted: Wed Dec 26, 2018 3:21 am

Joined: Sat Feb 24, 2018 11:48 pm
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diamaunt wrote:
SleepyHead566 wrote:
even though I know I am right with absolute certainty.


*backs away slowly, furtively looking for an exit.*


diamaunt wrote:
> I like to tackle this from a Scientific way

Is that what you call it.


Science is an approach to problem solving. I have eliminated all the possible variable and gone through a whole heap of experimentation, so yes I can tell with absolute certainty.


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LSAT
Unread post  Post subject: Re: Frustrated  |  Posted: Wed Dec 26, 2018 10:50 am

Joined: Tue Sep 05, 2017 9:40 am
Posts: 689
Location: WI
PAP Mask: F & P Simplus
PAP Machine: Airsense 10 Autoset
Pressure Setting: 12-20

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SleepyHead566 wrote:
The problem with CPAP is that it's a treatment not a cure and with a cure it takes multiple point of entry to help fix a problem. Finding the point of origin is extremely difficult which is where the problem first originated and it's hard to tell if it's the source or not. Problem with fixing the problem is that it's expensive and time consuming and very painful. if you are willing to repair the underlying problem and go through the pain, then it's worth it.



What happens if the problem is that you were born with a narrow airway...what's the cure?


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SleepyHead566
Unread post  Post subject: Re: Frustrated  |  Posted: Wed Dec 26, 2018 1:59 pm

Joined: Sat Feb 24, 2018 11:48 pm
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LSAT wrote:
SleepyHead566 wrote:
The problem with CPAP is that it's a treatment not a cure and with a cure it takes multiple point of entry to help fix a problem. Finding the point of origin is extremely difficult which is where the problem first originated and it's hard to tell if it's the source or not. Problem with fixing the problem is that it's expensive and time consuming and very painful. if you are willing to repair the underlying problem and go through the pain, then it's worth it.



What happens if the problem is that you were born with a narrow airway...what's the cure?

Go see an ENT specialist and a maxillofacial surgeon.

https://en.wikipedia.org/wiki/Oral_and_ ... al_surgery

But you'll need to see an orthodontist(getting braces) that can also coordinate with the oral surgeon so that you can have it in line with both. It might be you maybe have a deviated septum which may have caused the narrow airway along with bad teeth.You'll probably notice that all healthy people have got good teeth and their teeth aren't misaligned. Don't resort to drugs because they don't do crap. Instead listen to music because music is a wonderful thing. Space ambient or even listening to the rainforest helps bit by bit.

Whilst you are having that, stick with CPAP because it does help with the pain and struggles. Not dissing the technology because it's a wonderful piece of tech but treatment are not a cure and other problems will arise if they are not sorted and by other problems i mean that you'll need to constantly get distilled water, get a new mask every 6 months and a new headgear.

Our oral health is often always overlooked and it's done on purpose. You wonder why dental health is expensive as it is...It maybe the cause of most diseases plaguing mankind.


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SleepyHead566
Unread post  Post subject: Re: Frustrated  |  Posted: Wed Dec 26, 2018 7:34 pm

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https://anzmh.asn.au/2018/10/03/music-f ... al-health/


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