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dlipman
Unread post  Post subject: sleep apnea for about 15 years, needs emotional support  |  Posted: Mon Dec 10, 2018 6:08 am

Joined: Mon Dec 10, 2018 5:56 am
Posts: 2

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Hi. My name is Dovid and I have had mild to severe sleep apnea, not successfully treated, for about 15 years.
Every day, all the time, I feel like I am more tired than the people around me can even understand.
I just found this support group, and I'm hoping I can get in touch with people who can at least relate to what I'm going through.
People think that I'm not "sick", I'm "just" not sleeping well.
Other people think I should "just" look into this method or that method, and they don't understand how being so tired itself makes the idea of starting a new method frightening. Especially because it's always something I would have to do when I go to bed, which is a stressful enough experience for me every night even without putting some new thing on my face or my nose or in my mouth.
I would love if anyone who reads this would write back to me. As babyish as it might seem (I just turned 46), I really could use some emotional support.
Thanks for reading this,
Dovid


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LSAT
Unread post  Post subject: Re: sleep apnea for about 15 years, needs emotional support  |  Posted: Mon Dec 10, 2018 4:32 pm

Joined: Tue Sep 05, 2017 9:40 am
Posts: 689
Location: WI
PAP Mask: F & P Simplus
PAP Machine: Airsense 10 Autoset
Pressure Setting: 12-20

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What is stressful about going to bed? You say you don't want to try something "new" when going to bed...what have you tried previously?


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dlipman
Unread post  Post subject: Re: sleep apnea for about 15 years, needs emotional support  |  Posted: Mon Dec 10, 2018 11:39 pm

Joined: Mon Dec 10, 2018 5:56 am
Posts: 2

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I guess I should have explained more. I also have a kind of insomnia; it can sometimes take me hours to fall asleep, regardless of how unbelievably tired I am. I have tried a number of CPAP machines, with different kinds of masks, and an oral appliance and something for my nose.
It seems that my condition, and the inability to treat it, results from a jaw surgery I had twenty-five years ago, to correct the severe underbite I had. I have had chronic headaches ever since, and that seems to be the main cause of my insomnia. An ear-nose-and-throat doctor explained that my sleep apnea was also caused by it. My tongue is big, because my mouth used to be, and now that my mouth is smaller, my tongue has a tendency to go back and block my throat. The CPAPs aren't working apparently because I have a deviated septum and congestion in my nose which is why I've always been a mouth breather, so I can only use a full face mask, but I can't fall asleep with that because of my insomnia.
Sorry for being so long-winded; I really appreciate that you replied to my first submission.
- Dovid


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ShiftWorker
Unread post  Post subject: Re: sleep apnea for about 15 years, needs emotional support  |  Posted: Tue Dec 11, 2018 1:08 am

Joined: Thu Apr 13, 2017 2:08 am
Posts: 22
Location: Denver CO.
PAP Mask: ResMed Air Fit F20
PAP Machine: ResMed AirCurve 10 ASV
Humidifier: Integrated
Pressure Setting: 6/15/0/19/25

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Dovid,

My name is Robert. I have sleep onset insomnia, I also have complex apnea, meaning I have central apnea as well as obstructive apnea. I was not able to be compliant for years as I have trouble falling to sleep even without having a mask on. I have also been getting AFib, this is, I and the Dr's believe caused in part by not being Xpap compliant. I have learned (and that was a long experience) that I can get used to wearing the mask and get to sleep, because my sleep is much more restful then it was before becoming compliant. I now sleep faster then i did before "Getting used to the whole cpap deal" This was not an easy thing to do but I needed to stick with it, AFib is not fun and I need to be converted to a normal rhythm, this is expensive and itself not an ideal way to live.

My experience is that I now fall asleep faster with the machine hooked up then I did before treatment, this I and my Dr. believe is because my brain is now not afraid of sleep, needing to wake gasping for air, knowing that I will stop breathing during the night! In some strange fashion I have helped my sleep onset insomnia by wearing the hookup, not that it was easy to get used to, I wasn't falling to sleep anyway so I stuck with it and now go to sleep within ten minutes of going to bed!

I used to give up before "the Miracle Happened" but now by learning to sleep with my Full Face Mask (F-20) on and the machine on I believe that I sleep longer and better then ever before in my life, the feeling great took some time and I needed to "tweek" my settings a few times to achieve what I consider this level of treatment but I am so very happy I stuck with it.
I can only talk with reasonable confidence about my experiences but I have heard simular stories from this and other forums and friends who use their equipment

Please give this a real chance to work.

ShiftWorker.

P.S. I have found that my congestion goes away very soon after donning my mask. I don't have a deviated septum though. I also found that using a soft cervical collar for just over a month I trained myself not to "tuck" my chin into my chest while sleeping, that was however another step that I took after learning to sleep "hoked up".

Good luck on your journey. It is a journey, to be sure!


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SleepyHead566
Unread post  Post subject: Re: sleep apnea for about 15 years, needs emotional support  |  Posted: Tue Dec 25, 2018 1:57 pm

Joined: Sat Feb 24, 2018 11:48 pm
Posts: 76
PAP Mask: Airtouch F20
PAP Machine: Res Med S10 Auto
Humidifier: Res Med
Pressure Setting: 11-20

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dlipman wrote:
Hi. My name is Dovid and I have had mild to severe sleep apnea, not successfully treated, for about 15 years.
Every day, all the time, I feel like I am more tired than the people around me can even understand.
I just found this support group, and I'm hoping I can get in touch with people who can at least relate to what I'm going through.
People think that I'm not "sick", I'm "just" not sleeping well.
Other people think I should "just" look into this method or that method, and they don't understand how being so tired itself makes the idea of starting a new method frightening. Especially because it's always something I would have to do when I go to bed, which is a stressful enough experience for me every night even without putting some new thing on my face or my nose or in my mouth.
I would love if anyone who reads this would write back to me. As babyish as it might seem (I just turned 46), I really could use some emotional support.
Thanks for reading this,
Dovid


Hang in there. With sleep apnea it's a structural problem, based on my research, either caused by the sickness in the air(either injury sustained in the nose, throat through the cold or infection, or the fact that you sustained injury by playing sports or the fact that it's because of our modern lifestyle but I think it has more to do with the sickness in the air). Consult an ENT specialist and a Oral and maxillofacial surgeon along with an orthodontist that specailizes in sleep apnea. It's a painful journey but it will be worth it in the long long.

https://en.wikipedia.org/wiki/Oral_and_ ... al_surgery

Also there is nothing wrong with asking for help. It's only wrong until you can't be saved. At least you reached out for help.


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SleepyHead566
Unread post  Post subject: Re: sleep apnea for about 15 years, needs emotional support  |  Posted: Tue Dec 25, 2018 4:54 pm

Joined: Sat Feb 24, 2018 11:48 pm
Posts: 76
PAP Mask: Airtouch F20
PAP Machine: Res Med S10 Auto
Humidifier: Res Med
Pressure Setting: 11-20

Offline
Bad teeth and malocclusion also have to do with it too. Our mouth affects EVERYTHING I notice. Breathing is the essence of life.


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